1 in 4: time to change and end stigma and discrimination.

Speak Up!  This article appeared in the August issue of Mental Health Nursing and is reproduced here by the author.  Benjamin Gray, Service User Expert, Rethink Mental Illness.

1 in 4: time to change and end stigma and discrimination.

Dr Benjamin Gray, a service user with lived experience of schizophrenia, explains his work with a charity to campaign against stigma and discrimination.

According to official statistics, one in four people will experience some kind of mental illness. Even today, mental illness carries with it strong feelings of stigma, exclusion, fear and discrimination. These affect all aspects of life, from those as simple as making friends and socialising to being able to work and find employment. Many people who experience mental illness spend their lives on benefits at the margins of society. Stigma about mental illness is still a strong, pervasive and undesirable force.

According to a carer of someone with mental health problems: ‘I think within mental health one of the biggest challenges is stigma. If you’re a carer for a disabled child, if you’re a carer for somebody with a learning disability, if you’re a carer for someone with cancer, the instinctive reaction is “Oh, you must be an angel, you’re having to deal with that, poor thing” you know, it’s a tragedy. With mental illness there’s still the stigma of “Hold on, is it catching?”.

In the words of another person with schizophrenia: ‘I go out in the community and they arrange housing for me, but it never lasts long. They know I’m different so they pick on me and bully me. They smashed my windows and call me names, so it never lasts long and I end up back in hospital’.

Images of mental illness in the media and among the public are very negative too, generating feelings of fear, disbelief, guilt and chaos. These can be controlled through better information about mental illness, optimism, promoting routine living, better social and employment expectations and hope.

An important question arises: If 25% of people suffer from some kind of mental illness, is the experience of mental illness so aberrant, abnormal and wrong? There is a strong case to be made that mental illness is just like any other kind of illness, in need of sympathy, care and support. It is a common human experience that should not be stigmatised.

To begin to end discrimination and stigma, Rethink Mental Illness has recently run a very well received advertising campaign, Time to Change, both on television and by posters showing a brain with a bandage saying: ‘If only’, indicating the promise of healing mental illness and the hope of recovery.

The research team has also organised a number of lived experience advisory panels (LEAPs). These bring people with lived experience of mental illness and their carers together so that they can shape the direction of individual research projects. The LEAPs shape the important work that Rethink Mental Illness does to end stigma, exclusion and discrimination against people with mental illness.

1 in 4 means that mental illness should not be stigmatised. It is a common human experience that many people encounter in their lives.

Ending stigma and discrimination will no doubt be a difficult and unsettling journey for many, but if some health professionals and people in society continue to silence and stigmatise mental illness, the consequences may be far more serious.

Denial of stigma and exclusion also denies the possibility of opening up new approaches and avenues of debate that may in turn influence more democratic alternatives in mental health. Psychiatry and mental health, rather than doing things to or for people with mental illness, must begin to work with them to end stigma and discrimination.

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Peer Support in Hospital—A Shared Journey.

Peer Support in Hospital—A Shared Journey.

This article has just appeared in Schizophrenia Bulletin and is reproduced here by the author.
Benjamin Gray, Service User Expert, Rethink Mental Illness.

I have just spent a month in a psychiatric ward. In fact, as I write this, I’m still here. It’s my third relapse in 10 years, and the first time it lasted for nearly a year. Being in hospital is a painful experience, but it’s also a personal journey, and for me it was forming friendships on the ward that pulled me through (and continues to do so).

I’m diagnosed with schizophrenia. When I hear voices they are very negative and frightening, often saying things in a demonic hiss like “I’m an abuser” or “I’m coming.  You wait until you see what I’m going to do to you!”.

Being on the ward is often isolating and frightening, with people shouting at their voices and sometimes being restrained by staff. It would be better in my opinion if there was more therapeutic contact between us and the staff and more time for one-to-one supportive conversations to aid recovery.

The good thing about being in hospital is that I started taking my medication again, which I had stopped for some days. But the other reason I started to feel better was as a result of friendships on the ward.

Befriending other people, getting their support, praying for others, and engaging in group activities, all aided in my recovery. By taking part in group activities like creative writing or music therapy, I became closer to people (not as a diagnosis of schizophrenia, bipolar disorder, or depression but as human beings with complex problems, emotions, and difficult past histories).  We talked about our personal experiences, emotions, and difficulties and supported each other’s gradual progress and journey toward recovery. Importantly, I realized we were all in it together—I wasn’t alone.

I especially connected with a 70-year-old woman, Becky, who needed the care of nurses, me, and other people on the ward to make her drinks and just to hold her hand to comfort her distress. She has schizophrenia and dementia and is unable to look after herself. Recently, I took her with me to the chaplaincy group, where she said a little about herself and her 2 sons, which was the first group she had attended in some months. This helped us both a lot, and we have become good friends.

Friendships—showing a little bit of love and caring for each other—make the time on the ward easier and more rewarding. It can be tough and not everyone likes going into hospital, but I think the important thing to remember is that we can all support each other. It may seem like a little thing, but having a good relationship with another human being makes all the difference.

(Schizophrenia Bulletin Advance Access published October 30, 2012).